A rare quality that few people have is daring to dream and pursuing that dream despite all the obstacles life throws in the way. Hannah was born with a rare bone disorder, a genetic disease that makes ...

A Buffalo family is showing what is possible when parents use their skills to improve outcomes for their children with disabilities. Soo-Kyung Lee, and her husband, Jae Lee, were both scientists ...

TOPEKA (KSNT) – Carrie Greenwood is a proud, life-long Topekan. She was born with the disability ‘arthrogryposis’ which is a rare, congenital joint contracture in two or more areas of the body. She ...

Dec 5 (Reuters) - Attorneys with disabilities are vastly underrepresented at U.S. law firms, but a new diversity push aims to change that. Just 1.4% of law firm lawyers identified as having a ...

I was born with a rare disorder you have almost certainly never heard of, Moebius syndrome. This means I have facial paralysis and limited lateral eye movement. Moebius syndrome is highly visible but ...

LAS VEGAS (KTNV) — International Day of Persons with Disabilities is a day to bring awareness to lesser known conditions and to raise money for cures. Organizations from all over the world, including ...

Rare Disease Day is February 28. Disorders or diseases are considered rare if they affect fewer than 200,000 people in the United States. Although they are individually rare, the experience of having ...

Dani Medina thought she was dying. A rare genetic disorder and a severe case of COVID-19 left her rapidly declining. Her response was to pack her bags: “I’m just gonna travel and then die.” She ...

When Kendra Gottsleben was growing up, she wore dresses made by her grandmother. Many grandmothers care for their grandchildren this way, but Gottsleben was born with Maroteaux-Lamy syndrome, a rare ...

A film about a Kent boy who lives with a rare condition has been nominated for a Bafta TV award. Sky's Disability & Me documents the life of George Tappenden who lives with Spinal Muscular Atrophy ...