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Olympe souffre du xeroderma pigmentosum, aussi appelé la maladie des « enfants de la lune ». Ne pouvant pas être exposée aux rayons UV ni au soleil, elle vient sur le plateau avec sa maman pour raconter comment elle vit avec cette maladie au quotidien. ▶ Pour voir plus de cet extrait de #CCA : https://bit.ly/CCA-Lune-Olympe | Ça commence aujourd'hui
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Olympe souffre du xeroderma pigmentosum, aussi appelé la maladie des « enfants de la lune ». Ne pouvant pas être exposée aux rayons UV ni au soleil, elle vient sur le plateau avec sa maman pour raconter comment elle vit avec cette maladie au quotidien. ▶ Pour voir plus de cet extrait de #CCA : https://bit.ly/CCA-Lune-Olympe | Ça commence aujourd'hui
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@ahmedzainoun What are moon children? What is xeroderma pigmentosum? #skin #tiktokdoc #learnontiktok
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Zakarya, 10 ans, est ce qu’on appelle couramment « un enfant de la lune ». Il est atteint de la xeroderma pigmentosum, une maladie qui l’empêche d’être exposé au soleil pour éviter d’importantes brûlures ou de développer d’autres pathologies comme un cancer de la peau. Mais depuis la rentrée scolaire, le jeune garçon vit une belle histoire. Grâce à un élan de générosité et d’importants travaux, il a pu rentrer en classe de 6e au sein du collège Saint-Léon de Nancy (Meurthe-et-Moselle), comme ses
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Our daughters can't go out in sunlight ❤️‍🩹 #truly #borndifferent #xerodermapigmentosum #australia
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🌙 Children of the Moon: A Life Without Sunlight 🌙 Xeroderma Pigmentosum (XP) is a rare disease that makes the skin extremely sensitive to UV rays. Just a few seconds of exposure can cause burns and even skin cancer... Unfortunately, in countries like Algeria, many children don’t have access to the protection they need. Thanks to @AssoFiable , 35 protective helmets have already been sent, and more are on the way! This is just the beginning of a brighter future for these kids. ✨ You can make a d
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[Rare Disease] Tak-kun, who has xeroderma pigmentosum and cannot be exposed to sunlight, enjoys t...
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